Getwellbean

Kathleen had video footage of her interaction with her environment sent to an expert in England for analysis for the second time. Eight months ago the verdict was little to no voluntary interaction with her environment. This time the video results recorded definite attempts to interact including a forceful blink on command and efforts to respond. The verdict was that she is closer to 'locked in syndrome' rather than minimally conscious or pvs. In some ways this is even more painful. Kathleen is aggressively taking extracts to try and alter this situation.

The idea of "locked in syndrome" is indeed painful, because it's hard to imagine a person having all, or nearly all, of the same thoughts, ideas and emotions as the rest of us, but being unable to physically or verbally communicate them. In fact, to be honest, I can't imagine it at all! :(

However, being the eternal optimist/idealist, I do see a silver lining, even for locked in syndrome. If it's true that this is the more accurate description for Kathleen, at least that means the woman whom everyone knows and loves is still "in there." :) And I'm SURE that with all the advances in medicine and medical technology coming down the line, there will come a day that Kathleen can be "unlocked"!!

At least with this scenario, there's something to look forward to, since there's a good chance her personality, intelligence and memory are patiently (or perhaps IMpatiently!) waiting just on the other side of the door. :) This is in contrast to minimal consciousness or PVS due to severe brain damage, where there's less likelihood of anyone waiting behind the door.

But enough of my extended metaphors; I always give myself away as a writer, don't I? *chuckle* Anyway, even though I've never met Kathleen personally, I do think of her often, and frequently send good thoughts her way!

Your San Jose "neighbor",
Shari  

_____________________

Well said Shari. I appreciate you comments and agree with you 100%.  

_____________________

Post a Comment