Getwellbean
Wednesday 29 June
Interesting stem cell initiative undertaken by private funds in New Jersey
(Bedside) Kathleen had two good therapy sessions with family members today. In her first (morning) session she held her head up nearly 15 minutes.
A seemingly good way to perform research. Rather than compete against other Universities to be first, try and work together with researchers from other universities, an advisory board, and a business liaison to get the therapy to patients in need faster. See the work being done by the
Myelin Repair Foundation .
Tuesday 28 June
Kathleen seems better today and held her head well in the standing frame.
One of Kathleen's caregivers went to Kaiser yesterday with severe chest pains. The doctor told her she was fine and to take a little tylenol for the pain. After Mike and Kim heard the story, they told her how Kathleen had gone to Kaiser several times complaining of pains and had been ignored. The caregiver returned to a diffferent clinic of a doctor who was in private practice today. He took a chest x-ray and discovered she had a severe lung infection which will require nearly a month of antibiotics. Please be forceful in advocating for yourself with your doctors (especially Kaiser doctors). Unfortunately too many are concerned about the company's bottom line rather than your health (especially in states like California that have medical malpractice
caps.
Encouraging news for patients recovering from
strokes .
Monday 27 June
Kathleen had a really good stretch during a therapy session which she seemed to enjoy. At night, however, she had continued problems with phlegm and slept poorly.
Sunday 26 June
Kathleen had a near emergency getting her leg stuck in the shower chair this morning, but the problem was resolved without too much difficulty.
Thanks to Li Kai-shing a Chinese billionaire who donated 40 million for
stem-cell research.
Saturday 25 June
Kathleen was up in her chair and awake for a family get together at the house to celebrate god-daughter Madeline's 3rd birthday.
Roy Horn, of Siegfried and Roy, is undergoing
stem cell surgery to try and encourage the development of new neurons
Friday 24 June
Kathleen had a good physical therapy session today and replaced her old trach with a new one (it will now be a monthly change until she is able to go without one). Reportedly, the trach that came out looked much better than the previous month and her breathing has improved dramatically.
The Davey's received two touching letters from researchers at UCI today responding back to requests for help. Though they both stressed that the research was too early to help Kathleen, they also encouraged us not to give up hope.
Thursday 23 June
Kathleen's phlegm production decreased dramatically and she slept well at night.
Wednesday, 22 June
Kathleen had a great physical therapy session voluntarily holding her head up for close to five minutes. She also coughed up and then voluntarily spit out some phlegm (a seeming step forward).
Dr. Steindler's group in Florida received another positive
write up for their recent scientific advance.
Stem cell
Conference meets.
Tuesday 6/21/05
After a miserable evening Kathleen finally went to sleep around 1AM. She slept soundly late into the morning and was joined at times by the family's (Auntie Tutu's) new kitten Zazoo who crashed with her.
ZazooHappy 3rd birthday to Kathleen's goddaughter Madeline Marie (Maine) Martins who loves her Auntie Beeeeener very much.
Scientists have proven they can regrow brain cells in the laboratory moving one step closer to regenerating damaged brains.
Mcknight Brain Institute makes a scientific leap.
Monday 6/20/05
We are testing this new site to see if it can handle the traffic that getwellbean.us experiences on a daily basis.
Kathleen had a good day, with physical therapy combined with a long massage. At night, however, she had significant phlegm and was coughing and miserable late into the evening.